![]() Special devices to protect the airway and aid in feeding The Pierre Robin Network has excellent information concerning genetic testing for babies born with Pierre Robin Sequence.ĭepending on the severity of Pierre Robin, your child may have some or all of the following surgeries: FACES recommends genetic testing be done to determine if your infant has either of these associated syndromes. In addition to the physical characteristics common to Pierre Robin, your child may have the following problems:Ībout 40% of infants with Pierre Robin have Stickler Syndrome and about 15% have Velocardiofacial Syndrome. What kinds of problems could my child have? The chances of you having another child with Pierre Robin are very small, unless the Pierre Robin Sequence is a part of a syndrome. Pierre Robin does not tend to run in families. Will this happen to children I have in the future? If the child only has Pierre Robin, many experts believe that it is the result of the positioning of the fetus in the early weeks of pregnancy. ![]() They do not believe it is the result of anything the mother did or did not do during pregnancy. ![]() Horsehoe-shaped cleft palate may or may not be presentĭoctors do not know exactly why Pierre Robin occurs. It is usually referred to as Pierre Robin Sequence, although it is also known as "Pierre Robin Malformation Sequence", "Robin Anomalad", and "Cleft Palate, Micrognathia and Glossoptosis." It is the name given to the following birth defects if they appear together:Ī tongue which tends to ball up at the back of the mouth and fall back towards the throat (glossoptosis) Pierre Robin is not a syndrome or a disease.
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